DEBRA

Feeling buzzed for a cause

The EB Cross Country Adventure Ride of 2014 had riders visiting communities on adventurous routes through northern NSW helping to raise funds and awareness for a very good cause. Kelli Church went along to help and learn.

I’d never heard of ‘EB’ – Epidermolysis Bullosa – until a friend, John, told me about the incurable, skin-blistering condition that leads to a life of pain and disability. Those with EB are called ‘butterfly children’ because their skin is as fragile as butterflies’ wings.

John went on to tell of a charity adventure ride that provided a way to help raise funds, meet people, learn more about the condition and have fun at the same time.

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